Methods, Techinques and Researchers. Methodological Reflections on the Study of Disability
Resumen
The article aims to offer some reflections and considerations
arising from a case study regarding people with physical and
sensory disabilities. Starting with a brief overview on the
importance of the qualitative method in the study of disability,
and on the use of some qualitative research techniques applied
to this context, The article intends to highlight how, in some
cases, qualitative interviews can provide better results than
other techniques. Nevertheless, some difficulties can emerge
also using qualitative interviews, in particular with deaf
people. Moreover, since the research team included a disabled
researcher, the article describes some problems that the latter
(but not only) faced during the research.
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ACOCELLA, I. (2008) Il focus group: Teoria e tecnica. Milano: FrancoAngeli.
AL-MAKHAMREH, S. (2016) “Hearing the voices of young deaf people: Implications for social work practice in Jordan”. International Social Work. Volume 59, N. 1, 47–59.
ATKINSON R. (1998) The Life Story Interview. Qualitative research Methods, Volume 44. Thousand Oaks, CA: SAGE.
BALDWIN, M.; JOHNSON, W. G. (1994) “Labor market discrimination against men
with disabilities”. The Journal of Human Resources. Volume 29, N. 1, 1-19.
BARNAO, C. (2004) Sopravvivere in strada: Elementi di sociologia della
persona senza dimora. Milano: Franco Angeli.
BARNES, C. (1991) Disabled people in Britain and discrimination: A case for anti-discrimination legislation. London: C. Hurst & Co/British Council of Organization Disabled People.
BARNES, C. (1992) “Qualitative research: Valuable or irrelevant?”. Disability, Handicap & Society. Volume 7, N. 2, 115-124.
BARNES, C. (2000) “A working social model? Disability, work and disability politics in the 21st century”. Critical Social Policy. Volume 20, N. 4, 441-457.
BARNES, C.; MERCER, G. (1997) “Breaking the Mould? An introduction to doing disability research” in BARNES, C.; MERCER, G. (Eds.) Doing disability research. Leeds: The Disability Press, 1-14.
BARNES, C.; MERCER, G. (2005) “Disability, work and welfare: Challenging the social exclusion of disabled people”. Work, Employement & Society. Volume 19, N. 3, 527-545.
BARNS, A.; SVANHOLM, F.; KJELLBERG, A.; THYBERG, I.; FALKMER, T. (2015)
“Living in the present: Women’s everyday experiences of living with rheumatoid
arthritis”. SAGE Open. October-December 2015, 1–13.
BERTAUX, D. (1998) Les récits de vie. Paris: Editions Nathan.
BICHI, R. (2000) La società raccontata: Metodi biografici e vite complesse.
Milano: FrancoAngeli.
BICHI, R. (2002) Intervista biografica: Una proposta metodologica. Milano: Vita e Pensiero.
BICHI, R. (2007) La conduzione delle interviste nella ricerca sociale. Roma: Carocci Editore.
BICKENBACH, J. E.; CHATTERJI, S.; BADLEY, E. M.; ÜSTÜN, T. B. (1999) “Models
of disablement, universalism and the international classification of impairments,
disabilities an handicaps”. Social Science & Medicine. Volume 48, N. 9, 1173-1187.
BLACK, N. (1994) “Why we need qualitative research”. Journal of Epidemiology and Community Health. Volume 48, N. 5, 425-426.
BLAYLOCK, S. E.; BARSTOW, B. A.; VOGTLE, L. K.; BENNETT, D. K. (2015)
“Understanding the occupational performance experiences of individuals with low vision”. British Journal of Occupational Therapy. Volume 78, N. 7, 412–421.
BOORSE, C. (1975) “On the distinction between disease and illness”. Philosophy & Public Affairs. Volume 5, N. 1, 49-68.
BOORSE, C. (1977) “Health as a theoretical concept”. Philosophy of Science. Volume 44, N. 4, 542-573.
CAMERON, C. (2009) “Tragic but brave or just chips with chips? Songs and their lyrics in the Disability Arts Movement”. Britain in Popular Music. Volume 28, N. 3, 381–396.
CARTER, S.; HANDERSON, S. (2005) “Approaches to qualitative data collection in social science” in BOWLING, A.; EBRAHIM, S. (Eds.) Handbook of health research methods: Investigation, measurement and analysis. Berkshire: Open University Press, 215-229.
CELLINI, E. (2008) L'osservazione nelle scienze umane. Milano: FrancoAngeli. DENSHIRE, S. (2014) “On auto-ethnography”. Current Sociology. Volume 62, N. 2,
-850.
DUMITRICA, D. D. (2010) “Choosing methods, negotiating legitimacy. A metalogue on autoethnography”. Graduate Journal of Social Science. Volume 7, N. 1, 18-38.
ESPOSITO, J. (2014) “Pain is a social construction until it hurts: Living theory my body”.
Qualitative Inquiry. Volume 20, N. 10, 1179-1190.
FABBRETTI, D.; TOMASUOLO, E. (2011) Scrittura e sordità. Roma: Carocci Editore.
FENGE, L. A.; HODGES, C.; CUTTS, W. (2016) “Performance poetry as a method to understand disability”. Forum Qualitative Sozialforschung/Forum: Qualitative social research. Volume 17, N. 2, Art. 11.
FERRAROTTI, F. (1981) Storia e storie di vita. Bari: Laterza.
FINCH, J. (1984) “It’s great to have someone to talk to: Ethics and politics of interviewing women” in BELL, C.; ROBERTS, H. (Eds.) Social researching: Politics, problems, practice. London: Routledge and Kegan Paul, 166-180.
FOSTER, D. (2007) “Legal obligation or personal lottery? Employee experiences of disability and the negotiation of adjustments in the public sector workplace”. Work, employment and society. Volume 21, N. 1, 67-84.
FURMAN, R.; LIETZ, C. ; LANGER, C. L. (2005) “The research poem international social work: Innovations in qualitative methodology”. International Journal of Qualitative Method. Volume 5, N. 3, 24-35.
GEERTZ, C. (1983) Local knowledge: Further essays in interpretative anthropology. New York: Basic Books.
GERGEN, M. M.; GERGEN, K. J. (2011) “Performative social science and psychology”. Historische Sozialforschung/Historical Social Research. Volume 36, N. 4, 291-299.
GOFFMAN, E. (1961) Asylums: Essay on the social situation of mental patients
and other inmates. Garden City, NY: Doubleday & Company.
GOFFMAN, E. (1963) Stigma: Notes on the management of spoiled identity.
Englewood Cliff, N.J.: Prentice-Hall.
GRYTTEN, N.; MÅSEIDE, P. (2006) “‘When I am together with them I feel more ill.’ The stigma of multiple sclerosis experienced in social relationships”. Chronic Illness. Volume 2, N. 3, 195–208.
HARDING, J.; HARDING, K.; JAMIESON, P.; MULLALLY, M.; POLITI, C.; WONG-
SING, E.; LAW, M.; PETRENCHIK, T. M. (2009) “Children with disabilities' perceptions of activity participation and environments: A pilot study”. Canadian Journal Of Occupational Therapy. Volume 76, N. 3, 133-144.
HARTLEY, S.; MUHIT, M. (2003) “Using qualitative research methods for disability research in majority world countries”. Asia Pacific Disability Rehabilitation Journal. Volume 14, N. 2, 103–114.
HINDHEDE, A. L. (2012) “Negotiating hearing disability and hearing disabled identities”. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. Volume 16, N. 2, 169-185.
HIRANANDANI, V. (2005) “Towards a critical theory of disability in social work”. Critical Social Work. Volume 6, N. 1. Available at http://www1.uwindsor.ca/ criticalsocialwork/towards-a-critical-theory-of-disability-in-social-work Retrieved on 21/03/2017.
HODGES, C.; FENGE, L. A.; CUTTS, W. (2014) “Challenging perceptions of disability through performance poetry methods: The ‘Seen but Seldom Heard’ project”. Disability & Society. Volume 29, N. 7, 1090-1103.
JANS, L. H.; KAYE, S.; JONES, E. C. (2012) “Getting hired: Successfully employed people with disabilities offer advice on disclosure, interviewing, and job search”. Journal of Occupational Rehabilitation. Volume 22, N. 2, 155-165.
KEEFER, J. M. (2010) “Autoethnographer communities of practice” in DIRCKINCK-
HOLMFELD, L.; HODGSON, V.; JONES, C.; DE LAAT, M.; MCCONNELL, D.;
RYBERG, T. (Eds.) Proceedings of the 7th International Conference on Networked Learning. Available at http://silenceandvoice.com/wp-content/ uploads/2010/05/Autoethnographer-Communities-of-Practice-Keefer.pdf Retrieved on 10/01/2017.
KITCHIN, R. (2000) “The researched opinions on research: Disabled people and disability research”. Disability & Society. Volume 15, N. 1, 25-48.
LOEPPENTHIN, K.; ESBENSEN, B. A.; OSTERGAARD, M.; JENNUM, P.; THOMSEN,
T.; MIDTGAARD, J. (2014) “Physical activity maintenance in patients with rheumatoid arthritis: A qualitative study”. Clinical Rehabilitation. Volume 28, N. 3, 289 –299.
LOURENS, H. (2016) “Driving in unheard silence: Disability and the politics of shutting
up”. Journal of Health Psychology. E-Pub ahead of print.
MADISON, D. S.; HAMERA, J. (2006) SAGE handbook of performance studies.
Thousand Oaks, CA: SAGE Publication.
MAGUIRE, P. (1987) Doing participatory research: A feminist approach. Amherst, Massachusetts: University of Massachusetts at Amherst. The Center for International Education, School of Education.
MARCANTONI, M. (2014) Vivere la buio: La cecità spiegata ai vedenti. Trento: Erickson.
MARÉCHAL, G. (2010) “Autoethnography” in MILLS, A. J.; DUREPOS, G.; WIEBE, E.
(Eds.) Encyclopedia of case study research Vol. 1. Thousand Oaks, CA: SAGE Publications, 43-45.
MARRADI, A. (2007) Metodologia delle scienze sociali. Bologna: ilMulino,
MARRADI, A. (2010) “Misurazione, esperimenti, leggi: Il sillogismo scientista”. Quaderni di Sociologia. Volume 54, N. 3, 101-139.
MIK-MEYER, N. (2016) “Disability and 'care': Managers, employees and colleagues with impairments negotiating the social order of disability”. Work, employment and society. Volume 30, N. 6, 1-16. MMATLI, T. O. (2009) “Translating disability- related research into evidence-based advocacy: The role of people with disabilities”. Disability and Rehabilitation. Volume 31, N. 1, 14-22.
MORRIS, J. (1996) Encounters with strangers: Feminism and disability.
London: Women's Press.
MUECKE, M. A. (1997) “Policy as forethought in qualitative research: A paradigm from developing country social scientists” in MORSE, J. M. (Ed.) Completing a qualitative project. Details and Dialogue. Thousand Oaks, CA: SAGE publications, 357-380.
MURRAY, J. B., KINGER, L.; MCKINNON, C. C. (2007) “The deaf: An exploration of their participation in community life”. OTJR: Occupation, Participation & Health. Volume 27, N. 3, 113-120.
NGUNJIRI, F. W. ; HERNANDEZ, K. C. ; CHANG, H. (2010) “Living autoethnography: Connecting life and research”. Journal of Research Practice. Volume 6, N. 1, Article E1. Available at http://jrp.icaap.org/index.php/jrp/article/view/241/186 Retrieved on 10/01/2017.
O'DAY, B. L.; KILLEEN, M.; IEZZONI, L. I. (2004) “Improving health care experiences of persons who are blind or have low vision: Suggestions from focus groups”. American Journal Of Medical Quality. Volume 19, N. 5, 193-200.
Olafson, J.; Anderson Sathe, L.; Sanchez Valdes, L.; Heimann, P. (2011) “Learning from a Paralympian: Lifestyle considerations for a transpelvic amputee” in HOLDSWORTH, K. (Ed.) Alignment 2011, The Official Publication of the Canadian Association for Prosthetics and Orthotics Vol. 1. St. Ann’s ON, Canada: TD Publis, 86-89.
OLIVER, M. (1983) Social work with disabled people. Basingstoke: Macmillan.
OLIVER, M. (1986) “Social policy and disability: Some theoretical issues”. Disability, Handicap & Society. Volume 1, N.1, 5-17.
OLIVER, M. (1992) “Changing the social relations of research production?”. Disability, Handicap & Society. Volume 7, N. 2, 101-114.
PERROTTA, R. (2009) Un cuore di farfalla. Studi sulla disabilità fisica e stigma.
Milano: FrancoAngeli.
POLCZYK, P. (2012) “Autoethnography as an accessible method of research”.
Educational Forum. Volume 47, N. 2, 175-182.
PUGACH, M. (2001) “The stories we choose to tell: Fulfilling the promise of qualitative
research for special education”. Exceptional Child. Volume 67, N. 4, 439–453.
RIOUX, M. H. (2001) “Bending towards justice” in Barton, L. (Ed.) Disability, politics
and the struggle for change. London: Routledge, 34–48.
ROBERTS, H. (1981) Doing feminist research. United Kingdom, Europe: Routledge.
RUBIN, H. J.; RUBIN, I. S. (1995) Qualitative interviewing. The art of hearing
data. Thousand Oaks, CA: SAGE.
SENRA, H.; OLIVEIRA, R. A.; LEAL, I. (2011) “From self-awareness to self -identification with visual impairment: A qualitative study with working age adults at rehabilitation setting”. Clinical Rehabilitation. Volume 25, N. 12, 1140-1151.
SHAKESPEARE, T.; WATSON, N. (2001) “The social model of disability: An outdated ideology?” in BARNARTT, S.; ALTMAN, B. M. (Eds.) Research in social science and disability. Amsterdam: JAI; 9-29.
SMITH-CHANDLER, N.; SWART, E. (2014) “In their own voices: Methodological considerations in narrative disability research”. Qualitative Health Research. Volume 24, N. 3, 420-430.
STEPHENS, L.; RUDDICK, S.; MCKEEVER, P. (2014) “Disability and Deluze: An
Exploration of Becoming Embodiment in Children's Everyday Environments”.
Body e Society. Volume 21, N. 2, 194-220.
SYNNOT, A.; HILL, S.; SUMMERS, M.; TAYLOR, M. (2014) “Comparing face-to-face
and online qualitative research with people with multiple sclerosis”. Qualitative Health Research. Volume 24, N. 3, 431-438.
THORNICROFT, G. (2006) Shunned: Discrimination against people with
mental illness. London: Oxford University Press.
TOBOSO-MARTIN, M.; ROGERO-GARCÍA, J. (2012) “ ’Design for All’ in social research on persons with disabilities”. Reis. Volume 140, 229-238.
Union of Physically Impaired Against Segregation (1976) Fundamental principles
of disability. London: Author.
UNO (2015) “Improvement of disability data and statistics: Objectives and challenges. UN Conference of States Parties, 2015 June 9-11. Note by Secretariat”. Convention on the Rights of persons with disabilities. Available at http://www.un.org/ disabilities/documents/COP/crpd_csp_2015_3.doc Retrieved on 10/01/2017.
VERDONSCHOT, M. M. L.; DE WITTE, L. P.; REICHRATH, E.; BUNTINX W. H. E.;
CURFS L. M. G. (2009) “Community participation of people with an intellectual disability: A review of empirical findings”. Journal of Intellectual Disability Research. Volume 53, N. 4, 303-318.
World Health Organization (1980) “International Classification of Impairments, Disabilities and Handicap”. Available at http://apps.who.int/iris/ bitstream/10665/41003/1/9241541261_eng.pdf Retrieved on 10/01/2017.
World Health Organization. (2011) “World report on disability”. Available at http:// www.who.int/disabilities/world_report/2011/report.pdf Retrieved on 10/01/2017.
ZARB, G. (1992) “On the road to Damascus: First steps towards changing the relations of disability research production”. Disability, Handicap & Society. Volume 7, N.2, 125-38.
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